As support workers, we see firsthand the discrimination that people with dementia often face. Dementia can affect anyone, and while those living with the condition can lead active and fulfilling lives for many years after diagnosis, they frequently encounter discrimination and stigma that deeply impact their quality of life.
Dementia Action Week is a timely reminder that together, we can change this narrative and make a meaningful difference.
Understanding Dementia Discrimination
Dementia discrimination is, unfortunately, common and can manifest in various ways—some subtle and others more overt. It can occur at home, in public places, or during scheduled appointments. The sad reality is that 90% of friends, family, and caregivers of people with dementia report seeing their loved ones treated with less respect than others.
As one carer put it, “I think most discrimination is unintentional—people just do not know how to deal with it.” This lack of awareness and understanding often leads to hurtful actions that can isolate those living with dementia and discourage them from seeking support.
What It Looks Like
Discrimination against people with dementia can take many forms, including:
Social Exclusion: Family members or friends may withdraw from people with dementia, avoiding invitations to social gatherings or activities because they don’t know how to interact with them.
Overlooked in Healthcare: Doctors and other health professionals sometimes communicate solely with caregivers, assuming that the person with dementia cannot make decisions or understand the conversation.
Limited Access to Support Services: Many people with dementia are not offered access to wellness or allied health services based on the misconception that they won’t benefit from the support.
The Impact
Discrimination and stigma don’t just affect people’s social lives; they can have profound consequences on their mental and physical well-being.
When people with dementia feel judged, misunderstood, or excluded, it can discourage them from seeking medical care or connecting with friends, family, and the community. This isolation can exacerbate their condition, leading to a decline in overall health and happiness.
How You Can Make a Difference
The good news is that there are simple actions each of us can take to combat dementia discrimination and build a more inclusive community. Often, stigma arises from a lack of understanding about dementia. Here are some ways to support people living with dementia:
Educate Yourself and Others: Take time to learn about dementia and share what you know with your friends, family, and colleagues. Understanding the condition can help reduce fear and encourage more supportive behaviours.
Include and Invite: If you have a friend or family member with dementia, continue to include them in social activities. Simple gestures like inviting them for a coffee or a walk can make them feel valued and connected.
Communicate Directly and Respectfully: When interacting with someone who has dementia, speak directly to them rather than only addressing their caregiver. Acknowledge their opinions, involve them in decisions, and treat them with the same respect as anyone else.
Advocate for Equal Access to Services: Encourage access to wellness, allied health, and support services for people with dementia. This can help them maintain a better quality of life and stay engaged in their communities.
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Dementia Action Week is a chance to shine a light on the discrimination faced by people with dementia, but the impact of your actions can last far beyond this week.
By fostering understanding and making small changes, we can help people with dementia feel seen, heard, and valued. Let’s work together to end discrimination and support people with dementia in living their best lives.
Together, we can create a community where people with dementia are treated with the respect and dignity they deserve every day of the year.
